STOP NYC'S INVOLUNTARY A1C TRACKING PROGRAM
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The following articles and publications chronicle the development of the New York City's involuntary hemoglobin A1C tracking plan and provide useful background information on the plan’s effect on personal privacy. All articles are available to the public via the Internet at no charge. A number of the documents accessible via this web site require the Adobe Acrobat reader. To download your free copy of the Adobe Acrobat reader, please click on the logo below and follow the instructions provided.

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N.Y. City Officials Aim to Track How Diabetics Manage Illness
July 8, 2005 New York Times article announcing NYC's plans to track hemoglobin A1C results.
http://www.nytimes.com/2005/07/08/nyregion/08diabetes.html

N.Y. Diabetes-Tracking Plan Draws Concern
USA Today article that announced the NYC plan to track diabetes patients’ A1C results.
http://www.usatoday.com/news/health/2005-07-25-ny-tracks-diabetes_x.htm

Notice of Intention to Amend Article 13 of the NYC Health Code
The city's notice of intention/announcement of public hearings on the topic of its A1C tracking plan.
http://www.nyc.gov/html/doh/downloads/pdf/public/notice-intention-art-13.pdf

NYC Presentation: “Improving Diabetes Care for All New Yorkers”
Information on the NYC Health Department's justification for its A1C tracking plan.
http://www.nyc.gov/html/doh/downloads/pdf/diabetes/diabetes-presentation-a1c-registry.pdf

AAPS Statement on NYC A1C Tracking Plan
Association of American Physicians and Surgeons Statement on NYC A1C Tracking Plan.
http://www.aapsonline.org/confiden/schlafly-8-16-05.php

ACLA Written comments on the Proposed NYC A1C Tracking Plan
American Clinical Laboratory Association (ACLA), an association representing independent clinical laboratories throughout the country, comments on the proposed NYC A1C tracking plan.
http://www.clinical-labs.org/documents/A1cComment.pdf

Liberty Coalition letter to NYC Health Dept. on A1C Tracking
Liberty Coalition letter to New York City on patient privacy, and their comments on the proposed NYC A1C tracking plan.
http://www.libertycoalition.net/liberty_coalition_letter_to_new_york_city_on_patient_privacy

Written comments from the city's residents on proposed A1C registry
http://www.stopnyca1ctracking.org/downloads/a1c-writtencomments.PDF

Public Hearing Testimony for the NYC A1C Registry Plan
Tesimony from the August 2005 public hearing on the proposed hemoglobin A1C registry.
http://www.stopnyca1ctracking.org/downloads/nyc-a1c-hearing-08162005.PDF

NYC Notice of Adoption of amendments to Article 13 of the NYC Health Code
NYC Department of Health adopted its involuntary registry for hemoglobin A1C test results for patients with diabetes on December 14, 2006. No provision enabling patients to "opt out" of the registry were incorporated into the final plan.
http://www.nyc.gov/html/doh/downloads/pdf/public/notice-adoption-a1c.pdf

New York City to Register, Monitor 500,000 Diabetics
December 14, 2005 Bloomberg article on the passage of this plan.
http://www.bloomberg.com/apps/news?pid=10000103&sid=aKvzijjI0Zfc&refer=us

NYC wants to track 530,000 diabetics (includes lab info.)
Government Health IT article, which contains logistical details on how data for the A1C registry will be collected by the NYC Dept. of Health.
http://www.govhealthit.com/online/news/89548-1.html

New York City Starts to Monitor Diabetics
January 11, 2006 Washington Post article documenting the NYC A1C plan’s implementation.
http://www.washingtonpost.com/wp-dyn/content/article/2006/01/10/AR2006011001625.html

NYC Shares Lab Results Without Consent
WorldNetDaily.com comments on the program and the legal challenges that will most likely arise.
http://www.worldnetdaily.com/news/article.asp?ARTICLE_ID=48596

Medical Editorial on the NYC’s A1C Tracking Plan
Editorial published in the February 6, 2006 edition of the New England Journal of Medicine.
http://content.nejm.org/cgi/reprint/354/6/545.pdf

NYC A1C Registry in The Lancet
http://www.natap.org/2006/HIV/012506_03.htm

NY State Dept. of Health ECLRS (electronic clinical laboratory reporting system)
Details from the NYC Department of Health and Mental Hygiene regarding their expectation of laboratory compliance with ECLRS in order to make their job of stealing your test results easier.
http://www.nyc.gov/html/doh/downloads/pdf/public/eclrs.pdf

The A1cNow Monitor
A potential way for New Yorkers to have their A1C and their privacy, too!
http://www.inview-a1c.com/

Other Links

NYC FOIL Requests: Satisfaction NOT Guaranteed
New York City, and especially the NYC Department of Health and Mental Hygiene, have a long history of noncompliance with NYS FOIL laws. Read the report to NYC City Council below.
http://www.nyccouncil.info/pdf_files/reports/foilreport.pdf

New York State Freedom of Information Law (FOIL) General Information
http://www.dos.state.ny.us/coog/foil.html#who

New York State Freedom of Information Law (FOIL) Legislative Details
http://www.dos.state.ny.us//coog/freelaw.html

New York State Freedom of Information Law (FOIL) for the Department of Health
http://www.health.state.ny.us/nysdoh/phforum/foil/foil.htm

HIPAA Privacy Information
http://www.hhs.gov/news/press/2000pres/00fsprivacy.html

Institute for Health Freedom
http://www.forhealthfreedom.org/

New York Gets Serious about Tracking Diabetes (NPR Interview with Dr. Frieden)
http://www.npr.org/templates/story/story.php?storyId=515166

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